It has been a little over two months since we did PERCS. I am still thrilled with the results. He is still standing straighter, taking better steps, and has a better gait. He is stronger. He is working harder in therapy and he is much easier to stretch! He is looking pretty awesome I must say. He walks 4 minutes on the treadmill at therapy and is still riding his bike at home.
At home I try and do stretches multiple times per week along with some exercises. He also rides his bike and walks around the house. He is doing well and I am thrilled. I sometimes wonder if we should have gone through with SDR only because he is doing so well after PERCS. I was told by one Dr. in MA that he uses his tone to do everything and that SDR would take away his tone leaving him very weak but I see that after PERCS his tone has been taken away yet he is stronger. I am not sure if I was ready for SDR or ever would be but I want the best for my son and now I am pondering it. I guess that will be another year because I said NO SURGERY FOR TWO YEARS! See my brain never stops and this is what happens, the poor child! :)
We are off and camping this weekend. We bought a pop up camper this weekend to help ease the trip with Brendan. I hope it will help in some ways. I am looking forward to a comfortable night sleep that is for sure! The kids really enjoy camping and we do too. It is great family time. It is also an inexpensive way to vacation. I just hope it doesn't rain all weekend! We had one of those last year and it wasn't very fun. I am prepared with coloring books, cards, and legos in case it does.
It was Thanksgiving day back in 2002. I was only 23 years old and my life forever changed on that day. I had a placental abruption and Brendan was born at 33 weeks. He lost oxygen during delivery due to incompetent care but was a fighter and turned 17 this year. My journey in life over the past 17 years took many turns I was not expecting but I try to stay strong and have my husband by my side even when I am not.
5 comments:
Doing PERCS was definitely the right thing for Brendan. The SDR is a really big surgery so I can see your apprehension there but you'll know in time if it's the right thing. We are always thinking about what else we can do to help our kids and we think it's never enough!
Have a wonderful weekend camping. I have fond memories of camping in a pop-up camper as a kid. Malayna is a horrible sleeper so I'm not sure camping would work for her, I think she'd stay awake the whole time which wouldn't make for a happy time! My fingers are crossed for nice weather. It's been a very wet couple of days here in CT!
I definitely know you made the right choice in doing the PERCS. Brendan's progress is amazing. I can definitely see why you would consider the SDR, and I know that you will make the best decision regarding that when the time comes.
Camping sounds like fun. I think Emma might possibly enjoy that. A pop-up camper would be so cool. I always wanted to sleep in one of those when I was a kid. Have a good time, and I will be sending you good vibes for great weather. OH, and I will say a little prayer too...can't hurt.
What a great update! So glad to hear about Brendan's progress. Any surgery is always so, so tough to go through. I'm glad it has had a positive impact.
I hope you guys have fun camping!
We had a great time. The kids had fun and seemed like less work this year. We even lucked out with no rain!
PERCS improved my range of motion ... but SDR was the big change for me!
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