tag:blogger.com,1999:blog-8669256378479170537.post2605576465568143549..comments2023-10-11T08:23:21.159-07:00Comments on Our So Called CP Life (raising a child with Cerebral Palsy): What is like to be a mother to a child with CPWe take it day by dayhttp://www.blogger.com/profile/18249059310750320147noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-8669256378479170537.post-68018309830319120932016-01-08T17:06:50.157-08:002016-01-08T17:06:50.157-08:00I am so happy to hear you think that about your mo...I am so happy to hear you think that about your mom! We take it day by dayhttps://www.blogger.com/profile/18249059310750320147noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-12760910902122504812016-01-08T17:06:43.048-08:002016-01-08T17:06:43.048-08:00I appreciate your take on this but I don't nee...I appreciate your take on this but I don't need my child to be perfect. I tell him I am proud of him daily. I just want to try all the options available for his sake. I want him to live an easier life and possibly care for himself one day but if not that is okay too. I am not perfect and he doesn't need to be...I love him just the way he is. We take it day by dayhttps://www.blogger.com/profile/18249059310750320147noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-17176250131235791652016-01-08T17:05:59.270-08:002016-01-08T17:05:59.270-08:00I appreciate your take on this but I don't nee...I appreciate your take on this but I don't need my child to be perfect. I tell him I am proud of him daily. I just want to try all the options available for his sake. I want him to live an easier life and possibly care for himself one day but if not that is okay too. I am not perfect and he doesn't need to be...I love him just the way he is. We take it day by dayhttps://www.blogger.com/profile/18249059310750320147noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-47380298717332073062016-01-08T17:02:52.559-08:002016-01-08T17:02:52.559-08:00I am so happy to hear you think that about your mo...I am so happy to hear you think that about your mom! We take it day by dayhttps://www.blogger.com/profile/18249059310750320147noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-70421866561307826332016-01-08T17:02:23.474-08:002016-01-08T17:02:23.474-08:00So sorry I just saw this. My life is insane right ...So sorry I just saw this. My life is insane right now. I have 5 kida now! Stephviveiros@gmail.comWe take it day by dayhttps://www.blogger.com/profile/18249059310750320147noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-71245028475196941742015-10-16T08:36:32.961-07:002015-10-16T08:36:32.961-07:00Hi, can I email you???? I have twin boys one with ...Hi, can I email you???? I have twin boys one with CP. just had questions. im here balling in tears at work. I TOTALLY FEEL YOU. its crazy how I can relate so much. thank you for this post, bless you arne your family.<br />my email is <br />mscristy305@gmail.comAnonymoushttps://www.blogger.com/profile/10522130118837581605noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-22523982309090136902015-03-22T08:20:52.329-07:002015-03-22T08:20:52.329-07:00My Mom is my rock... sometimes I think she's a...My Mom is my rock... sometimes I think she's a rockstar. She's just that amazing. You all are!Aprilhttps://www.blogger.com/profile/05274650785974324652noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-60312490168911755072013-08-13T18:35:20.123-07:002013-08-13T18:35:20.123-07:00"Children who has CP needs special attention,..."Children who has CP needs special attention, love and care. I salute all moms like you who has given almost their time and efforts to these kind of children. I wish you all the best and may you continue to inspire many people always.<br /><br />Regards,<br /><a href="" rel="nofollow">birth injuries lawyer</a>"Anonymoushttps://www.blogger.com/profile/09819321219835009471noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-56898310393876276272013-05-29T14:38:15.753-07:002013-05-29T14:38:15.753-07:00As a former child with CP (I am a 42 year old woma...As a former child with CP (I am a 42 year old woman), the one thing I wish my parents could have done for me is to have gotten psychiatric help for themselves. If they had seen a therapist to get over their perfect-child fantasies, their rage at not getting their perfect child, and their resentment of me for not being thier perfect child, my life would have been SO much improved. No matter what I accomplished physically, academically, or socially, they were never able to get over their disappointment. My mother died at 47 and complained about what a disappointment I was almost until the day she died. So, do your child a favor and get some help with your issues. It sounds as if you have some real problems with perfectionism. I guarantee that your son will be fine; he knows no other way to live. His biggest problem is not the way he is, but the negative ways others perceive him. <br /><br />I also want everyone who reads this to know that all that surgery comes with some very long-term negative side-effects. I walked unassisted for the first time at 10 but have been in pain every day since I was 13. It's simply a matter of forcing our bodies to do what they do not naturally do. Just like if you walked on your hands all day. You could do it, but, it would hurt. It comes with a cost. My back, feet, and hips hurt constantly. I was never in pain when I used a wheelchair. I often wonder if it was all worth it. When does your child get to be just a child? All those damn doctor's appointments suck up his whole life. The stress on you is bad but, don't forget the stress on your child. Your child's doctors will never admit to you the negative effects of thier work. All they care about is "YOU MUST WALK!". When walking is terrifying, uncomfortable, painful and dangerous, it may not be worth it.Unknownhttps://www.blogger.com/profile/12903279872199444838noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-3752513524948792632013-05-29T14:21:49.666-07:002013-05-29T14:21:49.666-07:00This comment has been removed by the author.Unknownhttps://www.blogger.com/profile/12903279872199444838noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-3552832725058249382012-08-08T12:51:01.855-07:002012-08-08T12:51:01.855-07:00I think I could have written every word of this po...I think I could have written every word of this post. Especially about the surgeries and appointments. WOW! great post!Lighthouse Photographyhttps://www.blogger.com/profile/01581964920297814096noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-86449789651470471742011-06-22T07:31:34.914-07:002011-06-22T07:31:34.914-07:00AMAZING POST! (and i didn't even read it all, ...AMAZING POST! (and i didn't even read it all, sneaking this in at work) what i did read was super therapeutic for me, even as a dad. my son is 6, i found your blog by searching for info on SDR. these CP mom blogs i've found really give me hope and healing. thanksits all gonna burnhttps://www.blogger.com/profile/10767401359807646816noreply@blogger.comtag:blogger.com,1999:blog-8669256378479170537.post-52039977668489624452011-06-14T16:45:58.626-07:002011-06-14T16:45:58.626-07:00Hugs! I feel ya. I am right there with you! I co...Hugs! I feel ya. I am right there with you! I could have said all that myself. But, the joy is immeasurable when they do something totally awesome! Even the small stuff. Emma makes me a better person, I swear.Amyhttps://www.blogger.com/profile/11818818093248788832noreply@blogger.com