Saturday, January 31, 2015

Power Wheelchair.....19 DAYS.......

Well we bit the bullet and ordered Brendan a power wheelchair. Years ago I never thought he would even be in a wheelchair. When he was 3 years old he received his first chair. I hated it. I vowed to never order another one again. Well that didn't happen. We hardly used the chair at 3 and often just used his convaid stroller. It was much easier to transport and I was not ready to have my child in a wheelchair. It felt very different out in public to have a wheelchair vs a stroller. People looked at us differently, kids stared, adults did double takes....it was hard. It became necessary to order a new wheelchair when he was 7 years old. It brought on a whole new independence for him. He loved and still loves his chair. I no longer hated the wheelchair. He has already had this chair for almost 5 years! It is falling apart and he has outgrown it a few times. I can not wait to order a new one! Which we will BUT we decided to get a power chair as well. Having 5 children it is not always easy to be out and about and always having to push Brendan around. He doesn't always have the stamina or attention span to keep up. It will be pretty awesome for him to be riding along side of us instead of always lagging behind or asking his sisters to help push him. He has wanted one for years and I never wanted to get him one because I didn't want him to be lazy. I was recently told having a manual chair isn't for exercise and it will cause him issues as he grows from wheeling around so much. He should be able to keep up with his peers and not always be fatigued from it. I looked at it with a different prospective and ordered it for him. Never did I think we would be here....3 wheelchairs in by age 12 but we are and it is okay.


Maybe we won't even need this power chair. His surgery is coming up very fast! We are leaving in 19 days. How did that happen? How is his baby sister already 4 weeks old?! Time is flying by. I am as ready as I will ever be for it. I have no idea what life will be like but we are ready to begin this new journey. I just can't believe in 3 weeks he will be recovering from Selective Dorsal Rhizotomy. I never thought I would be ready for this surgery but here we are just weeks away. He is almost weaned off his baclofen. He will not be taking a muscle relaxant for the first time in 11 years! We were able to cancel his botox injections and hopefully never have them again for the first time in 10 years. He had his first personal trainer session last week to start strength training. Life is changing and I hope we are all seriously ready for the ride!

2 comments:

Sabrina Craig said...

What a wonderful, heartfelt gift you have given to your kid. People who suffer from cerebral palsy do deserve our guidance and undivided attention, especially since they are victims, first and foremost, and are suffering from something that is more of thrown at them than earned in any conceivable way. Anyway, I hope that Brendan is doing better these days. All the best!

Sabrina Craig @ Medical Attorney NY

Wheelchair said...

Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing.
CP PEDIATRIC WHEELCHAIR

Keep Posting:)