Wednesday, March 14, 2018

SDR 3 Year Anniversary (forgot to post OOPS)

This month marks 3 years since Brendan had SDR. Everyone always said time flies as you age and it surely does. Life has been different ever since he had surgery. He has come so far in every way. He is such a great kid but can still drive me insane daily. Looking back I still believe it was the best decision we could have made for him.

3 years later and I still work him out religously. He is still off all medications. His sentence structure has improved imensly. He can speak complete sentences and carry on conversations which I absolutely love. He had an Iphone for 5 years and switched over to the Samsung android and has learned how to use it all on his own and handles it great. I am impressed. He still uses his walker to all doctors appointments and short outings. He attends physical therapy once a week and has the best therapist that pushes him and doesn't put up with his shinanigans. We even laugh, a lot. Brendan is his typical self and the whole facility has fallen in love with him. He jokes around with all of them and his therapist recently pranked him which he found extremely funny. He loves pranks.

Does he walk in canes? No. Does he stand on his own? No. Does he still need a wheelchair? Yes. However, I still think this was the best surgery we could have had him go through. Being off life long medication is absolutely amazing. He is so much happier. I think he was in a lot of pain and we just didn't know. He is a tough kid and doesn't complain much about pain. I had to read him a questionaire regarding depression in the pediatricians office today and he said "I feel good" and all his answers were positive. He has so much more control of his body and can help a lot more with transfers and do many transfers all on his own. Yesterday at therapy he was able to turn himself around in the front seat of the van and slide down into his walker. I didn't have to lift him. I held his walker and his right hand. He was nervous but did it and then said "Can I do that next time, too"? He also comes with me to the grocery store weekly (accept if it is pouring rain, freezing cold or snowing) and walks so get some exercise. Sometimes I watch his pre SDR walking video to remind me how far he has come. Sometimes it's the little things that make me think "wow, he has come such a long way". For instance, he can now get a real haircut at the barber shop. He says things such as "I am quite hungry" and has self pride during work outs because he can actually complete tasks that we ask him to do"

February 20th marks 3 full years. It has been a ton of work but this new life has become routine. He enjoys working out. Some days he 'needs' to work out. He has so much pent up energy and is very relaxed and zen afterwards.

Still no regrets.

1 comment:

Sheila said...

So happy for you! I love hearing the positive outcomes. Brendan is such an inspiration!