Another Snow Day. Upcoming X Rays and we fly away soon

School is closed again! The snow days are piling up lately. It is almost Spring yet we are having a Nor'Easter. Oh yay. We are editing for YouTube today, doing some laundry and I am tagging clothes for work.

Brendan is all into YouTube lately and wants to make a new video later today so stay tuned. (See previous post)

Life is never NOT busy. I have to bring Brendan for x rays, again! I always bring him for x rays right before his ortho appointment and never have a problem. Well everything didn't go our way that day last month. I made an afternoon appointment so he wouldn't miss school and it took forever to get the little kids dropped off at our work and to drive to the city. It literally took 30 minutes to find a parking spot in the most annoying parking garage and we only took his walker so that took another 15 minutes to get inside. The place was packed with people. I have never waited so long to just check in. His appointment time was approaching and I had a feeling we were the last appointment of the day so I called to let them know we were running late. Well they told us to skip x rays and come to the appointment. I was a little aggrevated because I only made the appointment to check on his hips and ask about his knee. I asked how long the wait would be to get his x rays done and they said 45 minutes. I explained the issue but they didn't bump us up. We waited another 15 minutes just in case but had to leave because I really wanted to ask about his knee pain. It was such a process and ended up being pointless. I was beyond annoyed. The doctor's office moved over a year ago so now we have to walk back to the car and drive 6 whole minutes away to another office. By this point his knee was killing him and of course he walked horribly for the othro. Always awesome. His doctor now wants x rays of his knee as well so instead of just waiting another few months to check on his hips we have to go back next week. I am going to try and get the x rays done this Friday and his appointment is next wednesday, just a few days before we leave for Texas.

I am hoping it is only tendonitis and he will be okay to have intese therapy for a week. I will be sad if the doctor says we shouldn't go. We have been taking it easy on him so it can heal. I read that if you don't take care of it the pain can last a very long time.

Life is never dull around here. If all goes well we fly out the following Sunday and leave my husband home with 4 kids. It should be done snowing by then! At least it will be warm in Texas.

Brendan is making a question and answer video during his snow day. If you have a question for him comment on his video or here by 2pm.

A trip to the mall with all 7 of us.

https://youtu.be/8Vrk_6WhmfM

Just us enjoying some warm Winter days

https://youtu.be/95pwgNOUD34

Restorative therapies

https://youtu.be/7MIgSTO6DPw

Snow Day

10 Days until Spring and the kids have a snow day. It isn't the best timing because I just realized last night that Brendan's medicaid packet was due TODAY. I have definitely procrastinated before and have driven out there to hand deliver it which takes 40 minutes one way. They actually time stamp it upon arrival. Well now I am home with 5 kids. Not sure that will happen. I may have to call and ask if I can mail it today. I also needed to go to work to make copies of all his insurance cards for the packet. Of course today it snows!!!

Brendan has matured over the last few years. Snow days usually put him over the edge. Now he was a bit off on Thursday and wild for therapy. He wasn't the most cooperative and was a little crazy but any disruption to routine can cause any sort of behavior change. He used to get very upset and angry. He handles it much better this year. I had to call him from my bed at 5:30am to let him know school cancelled. He was already awake talking to his Alexa waiting for me to tell him. He told me he couldn't go back to sleep and listened to music. We were able to sleep until 8:15 am..... amazing!!! The little kids slept in. They never actually sleep in when we can. They were tricked because it was supposed to be a school day hahah!! It was great.

I should make a few phone calls today. I need to call axiobionics and Restorative Therapies. https://www.facebook.com/Restorative-Therapies-173178386057226/


There is a bike connected with estim that I think would really benefit Brendan. I was talking to his PT on Thursday about how he can not stand straight with his right leg anymore. His knee will not straighten. Now I was concerned because he had SPML a few months ago and I just couldn't understand why he can not stand tall. The PT told me since we can straighten his legs while sitting (which is actually harder to do and should cause him more pain which it doesn't) this means that it is all due to muscle weakness. He is actually having a hard time getting his right quad to activate causing weakness that we can't really improve. So he suggested Estim. Finally someoneon the same page as me. I have always wanted to try estim with Brendan and have always gotten the runaround. I am thrilled. The bike will be a process to get and Derek isn't thrilled with adding something this size into the house BUT this would be great for him to use all Winter long. I will share a video too.

Axiobionics makes a different style of braces. Not the typical AFO style. Brendan's entire right side is worse off and it really hinders him. It is frustrating because he seems so strong but once you hold back on the left side he can't do much. It is that weak! I feel he needs more assistance on that side to help him achieve higher goals. I have been procrastinating big time calling these companies so today is the day!

Should we take notes for our trip to Texas? If you have a sense of humor watch Zach Anner!

https://youtu.be/V4RonP9hZQw